FDA Okays COPD Maintenance Drug - DALIRESP
This is a once-daily oral tablet, new class medication
It's a matter of breath and death!
DRIVE4COPD

COPD HAS BECOME THE THIRD MAJOR CAUSE OF DEATH IN THE UNITED
STATES,
12 YEARS AHEAD OF PREDICTIONS. THERE WERE 141,075 DEATHS
IN 2008, ACCORDING TO THE LATEST
REPORT BY THE CENTERS FOR DISEASE
CONTROL.

"COPD is a disease characterized by a progressive airflow limitations
caused  by an abnormal inflammatory reaction to the chronic inhalation
of  particles. (...) From a review of data from all over the world, it is
clear that  tobacco is not the only cause of COPD."
(
Chest, 117/2/Feb. 2000 Supplement)

"Although COPD is a
leading cause of illness and death, its recognition
as a public health problem has been slow to evolve despite the rising
mortality rate for COPD and the decline in death rates for most of the
cardiovascular diseases. For example, between 1966 and 1995, the
age-adjusted death rates for coronary heart disease and stroke
declined by 45% and 58%, respectively, whereas the
death rate for
COPD increased by 71%!
" (Chest, 117/2/Feb. 2000 Supplement)

"COPD is a major and increasing health problem, which is predicted
to become the third commonest cause of death and the fifth commonest
cause of disability in the world by 2020. While there have been major
advances in the understanding and management of asthma, COPD has
been relatively neglected and there are no current therapies that reduce
the inevitable progression of this disease. However, because of the
enormous burden of disease and escalating healthcare costs, there is
now renewed interest in the underlying cellular and molecular
mechanisms and a search for new therapies, resulting in re-evaluation
of the disease. Despite its enormous global importance, there has been
relatively little research into COPD and it is the most underfunded
disease in relation to the global burden of disease." (
N Engl J Med
1999;340:1881-1887)

"....data from....US study suggest that
10% of persons with COPD account
for  > 70% of all medical care costs
. International studies of trends in
COPD-related hospitalization indicate that (...)
admissions per 1,000
persons per year for COPD have increased in all age groups > 45
years of age
. These trends reflect population aging, smoking patterns,
institutional factors, and treatment practices." (
Chest, 2000; 112:5S-9S)

While the death rate for COPD continues to climb (141,075 in 2008),
the
funding for research Is meager each year. SEE LATEST STATISTICS
The tremendous underfunding of COPD research has a very negative
impact on the development of new COPD drugs
. See the 2010
PhaRMA comparative statistics
here.

The Global Obstructive Lung Disease Initiative, initiated by the National
Heart, Lung, and Blood Institute and the World Health Organization, aims
to raise awareness of the increasing burden of COPD, decrease
morbidity and mortality, promote further study of the condition, and
implement programs to prevent COPD. It is your responsibility as a
citizen and a patient - if you happen to be one - to demand that the
governments and legislative bodies worldwide launch a massive
campaign to find effective treatment and possibly cure for this
debilitating and deadly disease. You owe it to yourself and to the future
generations.

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A NEW BOOK  BY DR. TOM PETTY IN COLLABORATION WITH
PULMONARY EXPERTS AND COPD PATIENTS
-- ADVENTURES OF AN OXY-PHILE 2 --
IS AVAILABLE.  FOR THE LIST OF  CONTRIBUTORS AND
ORDERING INFORMATION LOOK
HERE
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INFORMATION ABOUT PORTABLE OXYGEN EQUIPMENT
              (portables and POC) here
                                
           
OXYGEN CONCENTRATOR DEPOT

     GUIDE ON TRAVEL WITH OXYGEN
               (Healthcare Associates)

   LONG-TERM OXYGEN THERAPY (LTOT)

PORTABLE OXYGEN CONCENTRATORS 2008 LTOT
                  SURVEY
RESULTS

NEW CRITICAL COMPARISON OF OXYGEN CONSERVERS!

LTOT BLOGGER -- GET QUESTIONS ANSWERED
                     BY AN EXPERT

 
OXIMETER POCKET REFERENCE 2010

SMART NASAL CANNULA WITH A BUILT-IN FLOW METER.
CHECK A POWERPOINT PRESENTATION
HERE.

NEW AARC'S EXCELLENT PATIENT GUIDE TO INHALERS!!!

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OUR WEBSITE HAS BEEN RATED AMONG THE BEST IN TWOI
CATEGORIES BY THE AMERICAN THORACIC SOCIETY.
Quackwatch
SM
SHORTNESS OF BREATH - Check it!
GET CHECKED FOR ALPHA-1!
WHAT IS COPD  ===>>  See Video!

A BREATHING TEST VIDEO
FRONTLINE ADVICE FOR COPD
PATIENTS

SYMPTOMATIC COPD: MAINTENANCE
COMMONLY USED INHALERS
AARC Patient Guide to Inhalers - NEW!

NEW PROCEDURE FOR  EMPHYSEMA
COPD CLINICAL TRIALS

LEARN PROPER BREATHING
TECHNIQUES from experts

COPD & EMPHYSEMA SELF-CARE

ANXIIETY & PANIC ATTACKS IN COPD
DOWNLOAD THIS E-BOOK HERE  

COPD-ALERT IN THE NEWS
COPD-ALERT  FACT SHEET
JOIN COPD-ALERT (NEW PIN!!!)


GET YOUR COPD LUNG PROFILER
AND TREATMENT OPTIONS

MANAGE YOUR COPD (NJ-DENVER)

BOOKS FOR COPD PATIENTS

COPD RESOURCES - LINKS

INTERNATIONAL COPD PATIENT
ORGANIZATIONS

WATCH YOUR MEDICINES!

HOW SMOKING AFFECTS YOUR BODY

TRAVELING WITH OXYGEN
AT HOME AND ABROAD and
MOTORING WITH OXYGEN
(a slide show)
ACCP PATIENT GUIDE - NEW!

DOT FINAL RULE ON AIR TRAVEL
WITH OXYGEN EFFECTIVE 5/13/09

AIR TRAVEL WITH DISABILITIES

COPD ART (
DOTTIE'S GALLERY)
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COPD-ALERT 2000
                                Updated March 21, 2012
                        
LYN COLE
OUR MEMBER IN ALA
COLORADO "RUN THE
REGISTER"   Click
here

BELOW MIKE McBRIDE
RUNS MARATHONS
ON OXYGEN. SEE HIS RUN
AT THE BOSTON MARATHON
IN APRIL 2009.  
HERE
CHECK WebMD IF YOU MAY HAVE
COPD!!!
Assess your risk for a heart attack
here

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AIR QUALITY/OZONE ALERT

SPANISH LANGUAGE MATERIAL
ABG - examen de gasometria
Cansado de estar cansado

MEDICARE INFORMATION IN
FOREIGN LANGUAGES
HELP PERF  WITH JAPAN DISASTER RELIEF
FOR PULMONARY PATIENTS!!!  SEE ALSO
HERE
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MEDICARE GUIDANCE ON OXYGEN!!!
CMS guidance overview here.
SERIOUS PROBLEMS FOR OXYGEN USERS NOTED
here.
Contact your congressman and senators!

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CONTACT YOUR REPRESENTATIVES AND ASK THEM TO SUPPORT
H.R. 1041, WHICH WILL ELIMINATE COMPETITIVE BIDDING THAT
WILL BE HARMFUL TO MEDICARE BENEFICIARIES WHO RECEIVE
HOMECARE AND THE HOMECARE PROVIDERS WHO SERVE THEM.
TEXT OF THE BILL.
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ASK NOW!!! YOUR REPRESENTATIVES IN CONGRESS TO SUPPORT THE
MEDICARE RESPIRATORY THERAPY INITIATIVE, H.R. 941, FOR
INFORMATION ABOUT THIS INITIATIVE CLICK
HERE. TO SEND A
LETTER TO CONGRESS GO
HERE.
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